Updated: Jan 6, 2022
This is our second video of our Brave Butterfly Series. In this video, we talk about what it was like after I was born and how my parents handled Epidermolysis Bullosa with the little information they had on it. We didn't have the internet, there was no FaceBook groups and we surely didn't have Instagram. My parents had to self-educate themselves on EB. I am so grateful to have such loving parents and family. I hope you enjoy!